<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-5170961025944146154</id><updated>2012-01-31T22:25:02.725-07:00</updated><category term='developmental delays'/><category term='control'/><category term='My baby'/><category term='finances'/><category term='Cancer'/><category term='puppets'/><category term='outside'/><category term='dinner'/><category term='Labrums'/><category term='Baby after preemie'/><category term='New Bed'/><category term='Pirates'/><category term='no bullying'/><category term='mean people'/><category term='cheap'/><category term='hose'/><category term='the truth'/><category term='valentines'/><category term='Patriotic'/><category term='anxiety'/><category term='HOT'/><category term='summer'/><category term='Sacrifice'/><category term='Activites'/><category term='savings'/><category term='migraines'/><category term='scars'/><category term='snowboob'/><category term='Barney'/><category term='long term care'/><category term='Lehi'/><category term='laughing'/><category term='Arizona'/><category term='naked'/><category term='grandpa'/><category term='Iheartfaces'/><category term='Grandkids'/><category term='birth story'/><category term='kids'/><category term='PTSD'/><category term='Rotovirus'/><category term='therapy'/><category term='parenthood'/><category term='singing'/><category term='Lily'/><category term='Wedding'/><category term='appointments'/><category term='Dr.Gooch'/><category term='Christmas'/><category term='prematurity awareness month.'/><category term='saving. Dallas'/><category term='cobra'/><category term='life lessons'/><category term='accident'/><category term='faith'/><category term='Hair cuts'/><category term='rocks'/><category term='playing'/><category term='rain'/><category term='Preemie parents'/><category term='sleep study'/><category term='weekend in review'/><category term='church'/><category term='Endo'/><category term='Respite'/><category term='braille'/><category term='choices'/><category term='fun days'/><category term='give thanks'/><category term='birth to 3'/><category term='handsome'/><category term='Barrett'/><category term='To the Max'/><category term='Long term preemie issues'/><category term='serial casting'/><category term='iep'/><category term='Warm'/><category term='Motherhood'/><category term='technology'/><category term='Marriage'/><category term='Temple'/><category term='teeth'/><category term='EC'/><category term='incompetent cervix'/><category term='smart'/><category term='Iphone'/><category term='cerebral 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term='toddlerhood'/><category term='stitches'/><category term='self feeding skills'/><category term='family time'/><category term='markers'/><category term='drinks'/><category term='Shriners hospital for children'/><category term='pre-eclampsia'/><category term='Toes'/><category term='Dallas'/><category term='Disney'/><category term='fluff'/><category term='Cervix'/><category term='shapes'/><category term='media'/><category term='bath'/><category term='monkeys'/><category term='appoinments'/><category term='babies'/><category term='delays'/><category term='bbq'/><category term='adventures'/><category term='Amsterdam International'/><category term='books. special needs'/><category term='Family'/><category term='birthday boy'/><category term='good days'/><category term='apple'/><category term='Tyler'/><category term='preschooler'/><category term='angel baby'/><category term='Mel'/><category term='infertility'/><category term='Jaleah'/><category term='Preemie parents tyler'/><category term='botox'/><category term='infertilty'/><category term='endometriosis'/><category term='grieving'/><category term='disability'/><category term='blessings'/><category term='Statesman'/><category term='cerbral palsy'/><category term='recalls'/><category term='tothemax'/><category term='dancing'/><category term='bad days. tyler'/><category term='issues'/><category term='ubp'/><category term='swim lessons'/><category term='wheelchairs'/><category term='shunt failure'/><category term='car acciden'/><category term='share the love'/><category term='LDS conference'/><category term='workers'/><category term='baclofen trial'/><category term='Stephanie'/><category term='Reviews'/><category term='hat'/><category term='Eyes'/><category term='Exhaustion'/><category term='birthday'/><category term='research'/><category term='Spirit'/><category term='stress'/><category term='coupons'/><category term='vacation'/><category term='thankful'/><category term='malfunctions'/><category term='Morgan'/><category term='Henry B Eyring'/><category term='channel 2 news'/><category term='Amber'/><category term='Recovery'/><category term='high risk'/><category term='companions'/><category term='communication'/><category term='Mormons'/><category term='happy'/><category term='Tammy'/><category term='be nice'/><category term='poison control'/><category term='frustrations'/><category term='5mfm'/><category term='outlook'/><category term='way back when'/><category term='housekeeping'/><category term='Handy Manny'/><category term='fun stuff'/><category term='nurturing'/><category term='jobs'/><category term='breastfeeding'/><category term='depo Lupron'/><category term='Long'/><category term='Atypical blogging'/><category term='food'/><category term='Kayden'/><category term='day to day'/><category term='ROP'/><category term='Paypal'/><category term='baby Grayson'/><category term='Fall'/><category term='Death'/><category term='snow'/><category term='progress'/><category term='breaks'/><category term='medicine'/><category term='jumping'/><title type='text'>Because Miracles Happen</title><subtitle type='html'>"The child must know that he is a miracle, that since the beginning of the world there hasn’t been, and until the end of the world there will not be another child like him.” Pablo Casals</subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><link rel='next' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default?start-index=101&amp;max-results=100'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>918</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6557295935398589611</id><published>2012-01-21T21:04:00.001-07:00</published><updated>2012-01-21T21:08:39.226-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='seizures'/><title type='text'>Seizures.... a Poem</title><summary type='text'>A Mother's Perspective of a Seizure........It’s putting your nose under his cheek so that he can feel your presence to know that you are there, while his tears are falling on your face.It’s telling your son, “It’s OK baby”, when you don’t know if it will ever be ok.It’s singing “Jesus loves me” or “Peace Like A River”, while... praying to God that they will never come back.It’s having to gently </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6557295935398589611/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6557295935398589611' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6557295935398589611'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6557295935398589611'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2012/01/seizures-poem.html' title='Seizures.... a Poem'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3992103409229579234</id><published>2012-01-12T23:54:00.003-07:00</published><updated>2012-01-13T00:14:58.830-07:00</updated><title type='text'>Grayson -Six months</title><summary type='text'>Happy half way there birthday Baby Grayson! We had our 6 month well baby check and mean old shots today. He also got the flu shot. So while he will be held for the next few days, I am glad to have a few months off. Grayson is not a fat baby. He weighs in at whooping 15 pounds but stretches to about 27.9 inches. He is 90th percentile for height, under 12 percent for weight and his head is 10 </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3992103409229579234/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3992103409229579234' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3992103409229579234'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3992103409229579234'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2012/01/grayson-six-months.html' title='Grayson -Six months'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6591124048240966712</id><published>2012-01-08T21:58:00.002-07:00</published><updated>2012-01-08T22:09:11.769-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='LDS'/><title type='text'>Sunday "home" school</title><summary type='text'>Our local ward and school has had a few "letters" sent home about the outbreak of a bit of pertussis in our area. As a "freak out of germs" kinda girl we decided that we would have the sacrament brought to us and we would "home school " Sunday school Ty for a few weeks to keep the germs at bay. Yes, we know he goes to school, however, he has six kids in his class and the bus has 7 ( six of which </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6591124048240966712/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6591124048240966712' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6591124048240966712'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6591124048240966712'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2012/01/sunday-home-school.html' title='Sunday &quot;home&quot; school'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3755232991274057682</id><published>2012-01-05T23:06:00.004-07:00</published><updated>2012-01-05T23:16:18.719-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='milestones'/><category scheme='http://www.blogger.com/atom/ns#' term='6 months'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>Baby Grayson- The sitter</title><summary type='text'>Baby Grayson is the cutest thing in the entire WORLD!! Ok, ONE of the cutest things in the entire world. We are so happy to have him in our home and some day he will want to let someone else hold him and kiss on him and MAYBE even feed him. But till then, oh the smiles we get. To make it even more exciting and fun and heart happy, he is SITTING. We still topple now and then but overall we are </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3755232991274057682/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3755232991274057682' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3755232991274057682'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3755232991274057682'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2012/01/baby-grayson-sitter.html' title='Baby Grayson- The sitter'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2810609668683177320</id><published>2012-01-04T23:15:00.003-07:00</published><updated>2012-01-04T23:51:55.651-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='new blog'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler miracle'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;R&quot; word'/><title type='text'>" Being Retarded"</title><summary type='text'>Recently some things transpired in my "world" and the R word was thrown around as a verbal assault. I was VERY offended. Thankfully it was not directed to or at my child or there would have been a full on assault.Somehow  the "special needs" world isn't so big, and a post was put up just after Christmas from a mom posted a blog titled "Being Retarded" and found the blog very very accurate and </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2810609668683177320/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2810609668683177320' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2810609668683177320'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2810609668683177320'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2012/01/being-retarded.html' title='&quot; Being Retarded&quot;'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4880603932637461101</id><published>2011-12-30T21:01:00.002-07:00</published><updated>2011-12-30T21:08:25.807-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='welcome to holland'/><category scheme='http://www.blogger.com/atom/ns#' term='Special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Amsterdam International'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic illness'/><title type='text'>Amsterdam International</title><summary type='text'>For those who have read "Welcome to Holland" this might help with the early stages of how it feels.  As an older "Holland" resident there are times after having left the airport that I find myself having to go back in. When we get thrown a curve ball, have something new pop up or even just have a bad day, they are fewer and further apart but they happen. It is hard to find the support and </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4880603932637461101/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4880603932637461101' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4880603932637461101'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4880603932637461101'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/amsterdam-international.html' title='Amsterdam International'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7217531623594417339</id><published>2011-12-29T22:26:00.004-07:00</published><updated>2011-12-29T23:49:10.899-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='sensory processing'/><category scheme='http://www.blogger.com/atom/ns#' term='welcome to holland'/><category scheme='http://www.blogger.com/atom/ns#' term='anxiety'/><category scheme='http://www.blogger.com/atom/ns#' term='Exhaustion'/><category scheme='http://www.blogger.com/atom/ns#' term='Love'/><title type='text'>Sensory Processing with anxiety on top</title><summary type='text'>Ever since our Infamy day our lives have changed. Something about life right now is not right. It is off balance and kinda out of sorts. But not just the balance. But The brain. Ty's brain to be exact. It is like in the last month I have gotten a child I hardly recognize. It is heart wrenching, frustrating and OH so sad. We have known for awhile that Tyler has some sensory processing issues. For </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7217531623594417339/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7217531623594417339' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7217531623594417339'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7217531623594417339'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/sensory-processing-with-anxiety-on-top.html' title='Sensory Processing with anxiety on top'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-920073886949037196</id><published>2011-12-28T23:02:00.003-07:00</published><updated>2011-12-28T23:19:35.731-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Adoption'/><category scheme='http://www.blogger.com/atom/ns#' term='Mormons'/><category scheme='http://www.blogger.com/atom/ns#' term='LDS'/><category scheme='http://www.blogger.com/atom/ns#' term='Isaac'/><category scheme='http://www.blogger.com/atom/ns#' term='Labrums'/><title type='text'>A day to remember</title><summary type='text'>As most of you know our family is LDS or Mormon. Most who read this blog are probably family or stalkers. But either way, we are what we are! While we were struggling with infertility we had a family member and their family that also struggled with it ( and still do.) While we have and will have infertility issues, we have/will be coming to a conclusion in NOT adding MORE children to our home, </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/920073886949037196/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=920073886949037196' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/920073886949037196'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/920073886949037196'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/day-to-remember.html' title='A day to remember'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1450062555551459969</id><published>2011-12-27T22:56:00.002-07:00</published><updated>2011-12-27T23:43:50.676-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='memories'/><category scheme='http://www.blogger.com/atom/ns#' term='Christmas'/><title type='text'>Christmas 2011</title><summary type='text'>This Christmas was magical. Tyler totally got it, sort of, and he has talked about Christmas Eve for a while and he has understood Santa. He wasn't afraid of Santa either. He actually enjoyed the several times he saw Santa. When we did our Christmas cards ( that we have YET to send out) he stood right by Santa and said " Hey Santa, it's me Tyler." We spent a lot of time with Family ( on both </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1450062555551459969/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1450062555551459969' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1450062555551459969'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1450062555551459969'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/christmas-2011.html' title='Christmas 2011'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1985900603738440472</id><published>2011-12-20T21:41:00.002-07:00</published><updated>2011-12-20T22:04:00.866-07:00</updated><title type='text'>Neurosurgery</title><summary type='text'>Today we had our yearly neurosurgery appointment. We have been so lucky to have Dr. Walker as our doctor. The appointment seems to always be in December but this year we went so that we could get some more information on the baclofen trial and pump that has been presented. The baclofen trial is "not a big deal" and has been presented as such. I agreed but at the same time a trial is to see if we </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1985900603738440472/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1985900603738440472' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1985900603738440472'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1985900603738440472'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/neurosurgery.html' title='Neurosurgery'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5524368156405858856</id><published>2011-12-20T00:22:00.002-07:00</published><updated>2011-12-20T00:34:45.673-07:00</updated><title type='text'>The meltdowns</title><summary type='text'>I feel like I have a pretty good dose of patience when it comes to 99 percent of stuff that goes on. I tend to tolerate stuff that normally bothers others. I don't mind having lots of kids around. I don't mind my house being filled with my nieces and nephews. They know my rules, they usually listen. You know.. the stuff that being a mom and the coolest Aunt ever entails. When it comes to Tyler, </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5524368156405858856/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5524368156405858856' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5524368156405858856'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5524368156405858856'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/meltdowns.html' title='The meltdowns'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/-4lB_GTk2w5E/Tc26JE_etNI/AAAAAAAAArY/uD1ERzgn6Mc/s72-c/tantrum.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8125869177426355957</id><published>2011-12-19T00:16:00.001-07:00</published><updated>2011-12-19T00:16:17.209-07:00</updated><title type='text'>Oh my sweet babies!</title><summary type='text'></summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8125869177426355957/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8125869177426355957' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8125869177426355957'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8125869177426355957'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/oh-my-sweet-babies.html' title='Oh my sweet babies!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6424138350608004320</id><published>2011-12-16T21:59:00.003-07:00</published><updated>2011-12-16T22:04:05.550-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='seizures'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='weight'/><title type='text'>My kid- The Chubby</title><summary type='text'>After our seizure issue and the vomit issue Ty became this NEW kid. He has been starving for YEARS apparently. He went through an entire box of toaster struddles in a day. He just eats EVERYTHING. When we weighed in at clinic he was down almost 8 pounds from his last check. ( Don't judge Dr. M) The doc was not impressed but said that as long as he is eating and doesn't gain like ten over night </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6424138350608004320/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6424138350608004320' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6424138350608004320'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6424138350608004320'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/my-kid-chubby.html' title='My kid- The Chubby'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4800948964349523294</id><published>2011-12-12T21:47:00.003-07:00</published><updated>2011-12-12T22:45:00.428-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='seizures'/><category scheme='http://www.blogger.com/atom/ns#' term='neurologist'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Ordinary Miracle'/><title type='text'>Neurology</title><summary type='text'>We are now adding another specialist to our already long list of FUN. Neurology fast track got us in today. We spent the entire afternoon in the nasty Clinic B of Primary Children's medical center today. We got there at 1:30 for our appointment at 2. They got us to the weight and check in pretty quickly. We waited about a total of 25 minutes to be seen. ( Sadly, that is REALLY good for a </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4800948964349523294/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4800948964349523294' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4800948964349523294'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4800948964349523294'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/neurology.html' title='Neurology'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5528803216069379272</id><published>2011-12-11T22:23:00.002-07:00</published><updated>2011-12-11T22:31:48.187-07:00</updated><title type='text'>A first night</title><summary type='text'>Tonight is the first night since Ty's seizure that we have put him in his own bed. He has slept in his own bed just not in his own bedroom.  I also got nominated for crap mom of the year ( again!) for forgetting to fill baclofen today, so he is out of muscle relaxers for the night. You can tell on his sweet little body that it is going to be a tired muscle day tomorrow. We have talked with our </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5528803216069379272/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5528803216069379272' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5528803216069379272'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5528803216069379272'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/first-night.html' title='A first night'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8468065311371778146</id><published>2011-12-10T23:23:00.002-07:00</published><updated>2011-12-10T23:28:26.022-07:00</updated><title type='text'>Santa</title><summary type='text'>We are doing what we can to give Ty the best experience that his over protective and germaphobic mother will allow. So we opted to go to the Labrum's family party. Lots of us, mostly adults with a few babies ( all born pretty close to each other!) and otherwise just good old "old" people. A tradition that I don't know when it started NOR do I want remember some of them, but Santa came to visit. </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8468065311371778146/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8468065311371778146' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8468065311371778146'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8468065311371778146'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/santa.html' title='Santa'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2342554542592100251</id><published>2011-12-09T21:36:00.003-07:00</published><updated>2011-12-09T21:48:14.395-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='sickness'/><category scheme='http://www.blogger.com/atom/ns#' term='Dallas'/><title type='text'>The Aftermath</title><summary type='text'>The aftermath of the storm has been horrendous but seems to be hitting a good spot. Kinda. Tuesday was HORRIBLE with vomit every ten-20 minutes. From other reports of this nasty bug recipients we were lucky he was dehydrated enough that it wasn't coming from both ends. HOORAY for us! He was snowed from the seizure drugs, snowed from the seizure and vomit made for one sad little boy. He went to </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2342554542592100251/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2342554542592100251' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2342554542592100251'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2342554542592100251'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/aftermath.html' title='The Aftermath'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8346679838819222470</id><published>2011-12-08T23:32:00.002-07:00</published><updated>2011-12-08T23:39:48.606-07:00</updated><title type='text'>I am not thankful</title><summary type='text'>I am not thankful. I am not thankful. Sometimes in the midst of trials and tribulations you hear people say they are thankful for their trials. Or that they wouldn't  change anything. I hear that a lot with moms of t21 babies. But you know what. I TOTALLY WOULD. I am not thankful that Tyler has disabilities. I am not thankful that I have had to meet some awesome people. I am not thankful that I </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8346679838819222470/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8346679838819222470' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8346679838819222470'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8346679838819222470'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/i-am-not-thankful.html' title='I am not thankful'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5721225127259069061</id><published>2011-12-06T21:09:00.003-07:00</published><updated>2011-12-06T22:21:01.942-07:00</updated><title type='text'>Dec. 5 our day that will live in infamy</title><summary type='text'>That is a day that one of my nightmares actually became a reality. It is something I will never be able to get out of my mind. Trust me. I want to. All day Tyler was FINE. More than fine. He was happy, he ate his dinner and lunch and everything was fine. We bathed him, put Grayson to bed and Dallas had not been feeling very well. So I left to go to the store. I was gone for 33 minutes. While I </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5721225127259069061/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5721225127259069061' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5721225127259069061'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5721225127259069061'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/dec-5-our-day-that-will-live-in-infamy.html' title='Dec. 5 our day that will live in infamy'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7807001106189707313</id><published>2011-12-04T20:21:00.004-07:00</published><updated>2011-12-04T21:03:31.313-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='milestones'/><category scheme='http://www.blogger.com/atom/ns#' term='growing up'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><title type='text'>Grayson likes food</title><summary type='text'>Just after Grayson turned 4 months old we opted to start giving him rice cereal. I was trying so hard to wait the full six months but the kid was HUNGRY. He also went through a growth spurt right about that time and I just didn't feel like I was keeping up. He was so sad. So I went ahead and mixed up the rice. I think I am going to say it was a small hit. He likes it. Doesn't love it. I decided </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7807001106189707313/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7807001106189707313' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7807001106189707313'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7807001106189707313'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/12/grayson-likes-food.html' title='Grayson likes food'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3844004370980528433</id><published>2011-11-30T14:16:00.002-07:00</published><updated>2011-12-01T14:26:43.267-07:00</updated><title type='text'>Cerebral Palsy Clinic</title><summary type='text'>After our last appointment and failed baclofen attempt we had another appointment to me with the spastic team or CP Clinic. We needed and wanted more information before we went forward and we needed and wanted more information with both of us there and to see if there was any positive changes from last Phenol shots. Plus, we were out of refills for our baclofen and we get a bit desperate for </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3844004370980528433/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3844004370980528433' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3844004370980528433'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3844004370980528433'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/cerebral-palsy-clinic.html' title='Cerebral Palsy Clinic'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8469237781497820317</id><published>2011-11-29T21:53:00.002-07:00</published><updated>2011-11-29T21:59:57.717-07:00</updated><title type='text'>To move, or not to move</title><summary type='text'>Since we brought Baby Grayson home it seems we have been in a state of chaos mode. I had him, had a million kids dropped off, had to go save a sister and then a sister moved in. TOTAL CHAOS. My house has been filled to the top and yet it is a disaster that isn't cleaning itself. In the midst of this chaos Dallas and I decided we wanted to get out of Utah. Fast and for good. We looked at houses, </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8469237781497820317/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8469237781497820317' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8469237781497820317'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8469237781497820317'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/to-move-or-not-to-move.html' title='To move, or not to move'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2296350911942524789</id><published>2011-11-28T23:17:00.003-07:00</published><updated>2011-11-28T23:30:15.315-07:00</updated><title type='text'>The  End</title><summary type='text'>It is the end of the month. I haven't done the 30 days of Thanks on my facebook because I have way more than 30. Instead I thought I would do some stuff on my blog instead. 1) Because I truly am thankful for so many things. 2) Because I am so thankful for so many people they deserve to read it. I am most thankful for Dallas. He is seriously the best husband in the world. Sometimes I want to kick </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2296350911942524789/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2296350911942524789' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2296350911942524789'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2296350911942524789'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/end.html' title='The  End'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6997322580394884901</id><published>2011-11-27T21:27:00.002-07:00</published><updated>2011-11-27T23:28:05.322-07:00</updated><title type='text'>Pertussis, Germs, Crowds and Babies</title><summary type='text'>A long time ago, in a far away land, ( 2005) we brought home an infant that was not even 5 pounds. For three months before we scrubbed up to our elbows and hands and our face. Under our fingernails and then used avaguard. The hand washing was repeated every time we went in or out of our "pod." The same scrubbing routine was done every time we went to see our baby. Of course the hand washing </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6997322580394884901/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6997322580394884901' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6997322580394884901'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6997322580394884901'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/pertussis-germs-crowds-and-babies.html' title='Pertussis, Germs, Crowds and Babies'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7876115446222650728</id><published>2011-11-22T22:44:00.004-07:00</published><updated>2011-11-22T23:01:14.416-07:00</updated><title type='text'>A year</title><summary type='text'>A year ago our lives changed forever. Dallas and  I were dealing with infertility and had been for several years. 4 years to be exact. We saw specialists. We did what they asked. We gave them our money we left with head hanging low and sad sad faces. We went back to my trusty old OB for one last ditched attempt to give me a baby. He offered Femara, we maxed out the dose, we TRIPLED the dose of </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7876115446222650728/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7876115446222650728' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7876115446222650728'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7876115446222650728'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/year.html' title='A year'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2883068865457067261</id><published>2011-11-21T23:39:00.002-07:00</published><updated>2011-11-22T08:42:28.343-07:00</updated><title type='text'>Sometimes it isn't enough</title><summary type='text'>Sometimes I can't get through the day without hating "it." Sometimes I want to not get up and face the day of watching how much "it" hurts my child. Sometimes I really wish " it" did not exist. "It" is Cerebral palsy. Tyler is  a super hero that has "Terrible Palsy." This morning we went to an appointment where we discussed Tyler's terrible palsy. Like a big elephant in the room that sadly is </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2883068865457067261/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2883068865457067261' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2883068865457067261'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2883068865457067261'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/sometimes-it-isnt-enough.html' title='Sometimes it isn&apos;t enough'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1583733639119780801</id><published>2011-11-14T22:18:00.003-07:00</published><updated>2011-11-15T23:17:35.669-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='PTSD'/><category scheme='http://www.blogger.com/atom/ns#' term='Blogging for prematurity'/><category scheme='http://www.blogger.com/atom/ns#' term='Long'/><title type='text'>With A Shake Of PTSD On Top</title><summary type='text'>I was taking a nap with Grayson this afternoon. I was taking deep breathes of his sweet baby smells and I was startled awake. As I laid there, my heart was racing and I felt like I wanted to vomit. I took a few deep breathes and remembered where I was, that I was not where I always go when my eyes are closed. That I am safe, my babies are safe and that there are no beeps and dings of monitors </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1583733639119780801/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1583733639119780801' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1583733639119780801'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1583733639119780801'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/with-shake-of-ptsd-on-top.html' title='With A Shake Of PTSD On Top'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm4.static.flickr.com/3139/2847730128_052eff35f7_t.jpg' height='72' width='72'/><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5999840199909157982</id><published>2011-11-12T22:59:00.002-07:00</published><updated>2011-11-12T23:07:55.478-07:00</updated><title type='text'>Baby Grayson - 4 months</title><summary type='text'>I have never been so thankful for my newest addition baby Grayson. He was wanted and prayed for and loved before he even got here. His journey to get here was the most amazing, yet hardest thing I have ever had to do. He has literally been here to help mend a few broken hearts and bring a family closer than ever. Grayson is my sweet little sad kiddo. He is such a sweet baby but he is a sad one </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5999840199909157982/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5999840199909157982' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5999840199909157982'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5999840199909157982'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/baby-grayson-4-months.html' title='Baby Grayson - 4 months'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2245483024829032688</id><published>2011-11-04T23:00:00.002-07:00</published><updated>2011-11-04T23:16:30.624-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='prematurity awareness month.'/><category scheme='http://www.blogger.com/atom/ns#' term='Blogging for prematurity'/><title type='text'>Why Babies need 40 weeks</title><summary type='text'>Given the recent birth of our not quite "term" baby I am using a small disclaimer. There was a medical reason for Grayson to come early as a scheduled baby. I would have happily gone a few more weeks and would happily do it again. At 35 weeks a babies brain is only 2/3 of what it will weigh at 40 weeks. That safety of a growing baby in a womb makes that brain safer upon delivery.If you wait till </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2245483024829032688/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2245483024829032688' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2245483024829032688'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2245483024829032688'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/why-babies-need-40-weeks.html' title='Why Babies need 40 weeks'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6129/5976910728_8c585409c7_t.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8248519150537491320</id><published>2011-11-03T22:10:00.002-07:00</published><updated>2011-11-04T08:43:08.173-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Prematurity'/><category scheme='http://www.blogger.com/atom/ns#' term='Blogging for prematurity'/><title type='text'>November = Prematurity Awareness</title><summary type='text'>In the United States, 1 in 8 babies is born premature. Worldwide 13 MILLION babies are born premature. Prematurity is the leading killer of newborns in America. Those that survive often suffer life long health conditions like Cerebral Palsy, Blindness, Chronic lung disease, brain damage, Hydrocephalus and many other conditions. All babies deserve their 9 months.We fight, so they don't have to.</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8248519150537491320/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8248519150537491320' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8248519150537491320'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8248519150537491320'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/november-prematurity-awareness.html' title='November = Prematurity Awareness'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm3.static.flickr.com/2036/1929076753_9bf79c1778_t.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4118260648305034212</id><published>2011-11-03T21:47:00.003-07:00</published><updated>2011-11-03T22:06:02.260-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Halloween'/><category scheme='http://www.blogger.com/atom/ns#' term='family time'/><title type='text'>Happy Halloween</title><summary type='text'>Halloween time in our house has been a well thought out event. Though I had no desire to get out the decorations ( and I didn't get them out) Th knew exactly what he wanted to be. No matter how much we tried we couldn't talk him out of it . So I ordered a Mickey Mouse costume. When we got it, it was kinda childish so I had to order another one. Let me tell you Mickey Mouse doesn't come in a </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4118260648305034212/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4118260648305034212' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4118260648305034212'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4118260648305034212'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/11/happy-halloween.html' title='Happy Halloween'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6219/6301094361_27bd9f9b5e_t.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-34671529908739233</id><published>2011-10-27T22:39:00.002-07:00</published><updated>2011-10-27T22:49:21.268-07:00</updated><title type='text'>Insane</title><summary type='text'>Pretty much having 2 kids is kicking my trash. Not kidding. I feel like in the 3 months that he has been here I haven't had a chance to actually sit down and recover. No, like really. I basically begged my doc to let me go home early. He agreed because Ty couldn't come into the room without having several meltdowns and leaving with out me was a mess. My mom got sick while she was here. Not like a</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/34671529908739233/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=34671529908739233' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/34671529908739233'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/34671529908739233'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/insane.html' title='Insane'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7011183531903960072</id><published>2011-10-24T21:41:00.002-07:00</published><updated>2011-10-24T21:46:36.617-07:00</updated><title type='text'>Our Uncle Barrett</title><summary type='text'>Tyler said to me today Mom my uncle Barrett is Very very sick. I told him he was right and that we have had lots of special blessings and prayers that Jesus and Heavenly father will help him be without his tumor. Tonight on the way to the grocery store Tyler said" Mom my uncle Barrett is very sick."Right I answered. Then he said Oh don't worry my friend Jesus said he would take care of it. So </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7011183531903960072/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7011183531903960072' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7011183531903960072'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7011183531903960072'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/our-uncle-barrett.html' title='Our Uncle Barrett'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1902934162393075407</id><published>2011-10-23T21:23:00.004-07:00</published><updated>2011-10-23T22:07:03.358-07:00</updated><title type='text'>Grandpa My boy</title><summary type='text'>There is nothing sweeter in life than a dad and his son. But a pretty close second is a Grandpa and is grandson. Especially when the grandson relies so heavily upon the strong, wise hands of Grandpa my boy. Ty calls my mom, in the most loving sweet voice he can muster, Grandma the old lady. But in the sweetest most loving voice calls my dad Grandpa my boy. Sometimes it is grandpa the boy.  It is </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1902934162393075407/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1902934162393075407' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1902934162393075407'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1902934162393075407'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/grandpa-my-boy.html' title='Grandpa My boy'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-wfnoUZ1krNw/TqTqVHG9YbI/AAAAAAAADEM/ieDjvSM5wi4/s72-c/IMG_4535-1.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8275406622554168312</id><published>2011-10-13T23:02:00.002-07:00</published><updated>2011-10-13T23:29:49.371-07:00</updated><title type='text'>Grey's Anatomy</title><summary type='text'>Grey's Anatomy seems to really play the anxiety card for me. Last season they had the preemies on and this season they have a baby with Hydrocephalus. I should have just decided that it wasn't a good show for me to watch and move on, but nope, I get sucked in by Mcdreamy. Even though last month was the awareness month for Hydrocephalus I was a slacker. I wanted to share a few facts. 1 MILLION </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8275406622554168312/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8275406622554168312' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8275406622554168312'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8275406622554168312'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/greys-anatomy.html' title='Grey&apos;s Anatomy'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6143337603243371183</id><published>2011-10-12T21:22:00.002-07:00</published><updated>2011-10-12T21:47:21.301-07:00</updated><title type='text'>Grayson 3 months</title><summary type='text'>My dear sweet monkey is three months old. He has changed our WHOLE world. Man we love him. He is getting big fast. Almost to fast. But he is also SO different from our other world. At last weight ( which just happens to be last week) he was 11 lbs 5 ounces. He has had all his shots so far and he is doing really well. He smiles, coo's and has the sweetest conversations with his dad. He smiles </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6143337603243371183/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6143337603243371183' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6143337603243371183'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6143337603243371183'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/grayson-3-months.html' title='Grayson 3 months'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/-4P-2pLkSDms/TpZrfZwIPpI/AAAAAAAADEA/9IcTv6CvtEo/s72-c/IMG_4017-1.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3111202226438232945</id><published>2011-10-11T22:11:00.002-07:00</published><updated>2011-10-11T22:23:13.632-07:00</updated><title type='text'>Our new team</title><summary type='text'>We have put together a whole new team for Tyler " the Professor" to spend his time with outside of school. We have gotten a new PT named Ben. An OT named Bryan and a speech lady named Carin. We have gone to Ben the most. Ben is one of the best PT's that we have ever had. So much fun that Ty knows we are going to see him a few days BEFORE we go and can't stop talking about it. Ben has been great </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3111202226438232945/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3111202226438232945' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3111202226438232945'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3111202226438232945'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/our-new-team.html' title='Our new team'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2528292537681150893</id><published>2011-10-05T22:18:00.002-07:00</published><updated>2011-10-05T23:20:12.107-07:00</updated><title type='text'>We Stick Together As A Team</title><summary type='text'>Sometimes the best wisdom comes to those in small bodies. Sometimes because they are small we overlook it and just think it is cute. Lately I have really listened to what Tyler has to say. Somethings are just cute. Like Super cute. Other things are sad, but one thing he says is VERY profound... and very true. Tyler says ( a lot) that "It's ok mom. Everyone makes Mistakes. We just stick together </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2528292537681150893/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2528292537681150893' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2528292537681150893'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2528292537681150893'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/10/we-stick-together-as-team.html' title='We Stick Together As A Team'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4287811403632991325</id><published>2011-09-30T15:18:00.005-07:00</published><updated>2011-09-30T22:21:35.199-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='Ordinary Miracle'/><category scheme='http://www.blogger.com/atom/ns#' term='birthday'/><category scheme='http://www.blogger.com/atom/ns#' term='God'/><category scheme='http://www.blogger.com/atom/ns#' term='Love'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><category scheme='http://www.blogger.com/atom/ns#' term='hard'/><title type='text'>The Discovery Stage</title><summary type='text'>The day of Ty's birthday I ran into a mom of a cute little guy that was in his class last year. C ( how we lovingly will  refer to this cute boy!) has autism but is VERY functioning and VERY super friendly. Instead of transitional kindergarten he went to a charter school. I thought he was going to go to typical kindergarten. Anyway, I asked the mom how he was transitioning. Tears welled up in her</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4287811403632991325/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4287811403632991325' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4287811403632991325'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4287811403632991325'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/discovery-stage.html' title='The Discovery Stage'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/-JVgaP5OAPBE/Toah9jYXJnI/AAAAAAAADDo/YFFbHz3FuiQ/s72-c/momt.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7186998034736985505</id><published>2011-09-26T22:42:00.002-07:00</published><updated>2011-09-26T22:47:30.753-07:00</updated><title type='text'>2 month check up</title><summary type='text'>Grayson had his 2 month check up a few weeks ago. I am SO behind. I took him in and we got his naked weight. Kid is a hefty 10 lb 11 oz. He still is little but he is doing great. He has some cute little fat rolls on his legs and behind his knees. He is average for everything except his head. It is in the tenth. Normally we aren't on any of these. But Grayson is a trooper and is giving us a run </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7186998034736985505/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7186998034736985505' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7186998034736985505'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7186998034736985505'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/2-month-check-up.html' title='2 month check up'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8366624390377583248</id><published>2011-09-25T21:38:00.003-07:00</published><updated>2011-09-25T22:03:36.560-07:00</updated><title type='text'>Handicapped Parking</title><summary type='text'>A year or so ago we finally broke down and asked for a handicapped parking permit for Tyler. It was one of the hardest things that I could do. It sounds silly because it is obvious that something is "wrong" and he walks differently than others. But we look "normal" until he starts to take off on his own.A few times we have had people stare and recently we have had a peanut gallery actually SAYING</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8366624390377583248/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8366624390377583248' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8366624390377583248'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8366624390377583248'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/handicapped-parking.html' title='Handicapped Parking'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-729281198391798739</id><published>2011-09-21T23:14:00.003-07:00</published><updated>2011-09-22T22:32:04.821-07:00</updated><title type='text'>Six Year Old Miracle</title><summary type='text'>9/21/2011 was yet another Miracle. Tyler turned 6. So much has happened this last year but it is MIRACULOUS.. Tyler THE PROFESSOR turned a fabulous six!Tyler is seriously one of the most Christlike person I have EVER met in my life. If I  could be like him I think the world would be a better place. Some Random Tyler facts: He was due December 25 and was going to be a Christmas present. He still </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/729281198391798739/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=729281198391798739' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/729281198391798739'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/729281198391798739'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/six-year-old-miracle.html' title='Six Year Old Miracle'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/-0eKLduH_i14/TnrSl9Lm4yI/AAAAAAAADDQ/E4hs2S-o-d4/s72-c/IMG_3249-1.jpg' height='72' width='72'/><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2771973290186135198</id><published>2011-09-17T23:25:00.002-07:00</published><updated>2011-09-17T23:34:18.296-07:00</updated><title type='text'>Are you Aware?</title><summary type='text'>The month of September is hydrocpehalus awareness months. We are aware of hydrocepehalus. Due to the brain bleeds that Ty had he developed hydrocephalus. .That landed us at PCMC where we met our life line, Dr. Walker. We got our first shunt in April of 2006, revised in May of 2006 and previous to the shunt was a total skull reconstruction. In Feb. 2007 we had another total skull reconstruction. </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2771973290186135198/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2771973290186135198' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2771973290186135198'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2771973290186135198'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/are-you-aware.html' title='Are you Aware?'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2583520849757294520</id><published>2011-09-11T21:16:00.002-07:00</published><updated>2011-09-11T21:22:44.194-07:00</updated><title type='text'>Aunt Nicky and a bunch of stuff</title><summary type='text'>This past 2 weeks has been insane. My goal with the new school year was to get myself going, get to the gym and lose some weight. It started off slow but it has picked up really well. I can no longer have cookies in my house. But otherwise, we can go to the gym at night, Thanks to Aunt Nicky. A tragic event landed Aunt Nicky at our door step where we offered her a safe, rent free location to live</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2583520849757294520/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2583520849757294520' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2583520849757294520'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2583520849757294520'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/aunt-nicky-and-bunch-of-stuff.html' title='Aunt Nicky and a bunch of stuff'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8959768132354760291</id><published>2011-09-10T21:33:00.002-07:00</published><updated>2011-09-10T22:05:21.960-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='baclofen trial'/><category scheme='http://www.blogger.com/atom/ns#' term='medicaid'/><category scheme='http://www.blogger.com/atom/ns#' term='cost'/><category scheme='http://www.blogger.com/atom/ns#' term='Special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>We aren't doing it</title><summary type='text'>When we had our last rehab appointment we needed to go to the spastic clinic. We had never actually been to it since we did 90 percent of our stuff at Shriner's hospital, but we got the appointment and I took Tyler ( and Grayson because I was still pregnant, haha) and started a plan to get Ty a little less spastic ( or tight) in his legs and other parts. Originally the plan presented was to cast </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8959768132354760291/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8959768132354760291' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8959768132354760291'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8959768132354760291'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/we-arent-doing-it.html' title='We aren&apos;t doing it'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7175319866000831880</id><published>2011-09-09T22:25:00.002-07:00</published><updated>2011-09-09T22:34:42.232-07:00</updated><title type='text'>Grayson's Blessing</title><summary type='text'>After a LONG first week of school we had a big party. A big party for baby Grayson. In our church we don't have Christening's but we do have blessings. We had a great turn out and we were so thankful to have so many of the people who mean most to us. In fact, I can't think of a soul that would have made the day better. Saturday we were at the hydrocephalus walk and then had Grandma and Grandpa </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7175319866000831880/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7175319866000831880' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7175319866000831880'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7175319866000831880'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/graysons-blessing.html' title='Grayson&apos;s Blessing'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-imBM5lo1v0s/Tmr25xEAFcI/AAAAAAAADDI/xuWuQaGsIJY/s72-c/IMG_3154-1.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-950335179373017406</id><published>2011-09-07T21:27:00.002-07:00</published><updated>2011-09-07T22:07:55.562-07:00</updated><title type='text'>Hydrocephalus Awareness Walk</title><summary type='text'>This past weekend we were able to participate in the hydrocephalus awareness walk in Sugar House park here in Utah. We didn't do a ton of fundraising for it this year but I plan to now that I know how it works. But overall Tyler was able to donate a good chunk of money for his team. We had to be there bright and early Saturday morning. So early that we were late. I know * SHOCKER!* We did get </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/950335179373017406/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=950335179373017406' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/950335179373017406'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/950335179373017406'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/09/hydrocephalus-awareness-walk.html' title='Hydrocephalus Awareness Walk'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6187/6125807091_be40e35576_t.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1322726067519022486</id><published>2011-08-31T21:57:00.002-07:00</published><updated>2011-08-31T22:55:45.454-07:00</updated><title type='text'>A quickie: Baclofen</title><summary type='text'>Recently my dad went through some pretty painful injections to help his back and sciatic nerve. He has battle so many sores and stuff and he is a pretty dang hard worker so his body suffers a bit. I was dropping off some stuff ( and they both need some baby Grayson kisses and smiles) and we were sitting in the office. The nurse/worker said that they were giving him some muscle relaxers to help </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1322726067519022486/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1322726067519022486' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1322726067519022486'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1322726067519022486'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/quickie-baclofen.html' title='A quickie: Baclofen'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5569855672242613655</id><published>2011-08-30T00:20:00.002-07:00</published><updated>2011-08-30T00:35:35.660-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='mommyhood'/><category scheme='http://www.blogger.com/atom/ns#' term='birthday'/><title type='text'>Happy Birthday Mom</title><summary type='text'>Yep. I turned the BIG 31! I vaguely remember when my mom was in her thirties. I thought in high school 30 was OLD. Well, I don't think that any more. We started my birthday out with Sunday dinner ( the Sunday before my birthday) at Dallas' parents house. It was a great time and the cake was delicious.  We had told Tyler throughout the week it was my birthday and he as stoked to be able to yell </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5569855672242613655/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5569855672242613655' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5569855672242613655'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5569855672242613655'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/happy-birthday-mom.html' title='Happy Birthday Mom'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5816832252378770191</id><published>2011-08-28T20:28:00.002-07:00</published><updated>2011-08-28T21:28:20.941-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='speech therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>Speech Evaluation</title><summary type='text'>Since getting disability and starting back on the band wagon we got a private speech evaluation so we could start private speech. No speech evaluation is the same. This evaluation along with the last one used the same test but this time he was able to get the "older" test. We started the test with Miss A and he did really well. This was the first time that I had seen him actually listen to what</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5816832252378770191/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5816832252378770191' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5816832252378770191'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5816832252378770191'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/speech-evaluation.html' title='Speech Evaluation'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2120576826809655395</id><published>2011-08-27T21:08:00.006-07:00</published><updated>2011-08-27T21:33:49.892-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='blessings'/><category scheme='http://www.blogger.com/atom/ns#' term='big brother'/><category scheme='http://www.blogger.com/atom/ns#' term='LDS'/><category scheme='http://www.blogger.com/atom/ns#' term='Spirit'/><category scheme='http://www.blogger.com/atom/ns#' term='babies'/><category scheme='http://www.blogger.com/atom/ns#' term='Love'/><title type='text'>Fertile in our Faith</title><summary type='text'>Right after I had Grayson Ty and I needed to get out of the house and I was itching for a good church book to read. I haven't had the desire to read any kind of church book for a LONG time. I had wanted to get a different book but was looking around the store and found this one. Fertile in Our Faith is written by Krista Ralston Oakes. It felt strange buying a book on dealing with infertility </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2120576826809655395/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2120576826809655395' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2120576826809655395'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2120576826809655395'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/fertile-in-our-faith.html' title='Fertile in our Faith'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-_y3onXVLgJ8/TlnEe7wMosI/AAAAAAAADBQ/27wfXwBLWAE/s72-c/IMG_1938-1.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6270438245133525456</id><published>2011-08-25T21:39:00.002-07:00</published><updated>2011-08-25T22:01:48.454-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='education'/><category scheme='http://www.blogger.com/atom/ns#' term='kindergarten'/><category scheme='http://www.blogger.com/atom/ns#' term='school'/><category scheme='http://www.blogger.com/atom/ns#' term='therapy'/><title type='text'>Meet the Teacher</title><summary type='text'>Everyone started school this week. But Tyler...... Ok, but the whole school district's kindergartners. He didn't care much UNTIL the bus came to make their route and get times. I took him out to met the drivers and he climbed on, sat down in a seat and when we tried to get him out he cried and cried and cried. As I got him off the bus he told me that he was so sad because he wanted to go to "</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6270438245133525456/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6270438245133525456' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6270438245133525456'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6270438245133525456'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/meet-teacher.html' title='Meet the Teacher'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8553848226214362688</id><published>2011-08-23T22:07:00.003-07:00</published><updated>2011-08-23T22:36:49.649-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>We are back on the wagon</title><summary type='text'>We fell off the wagon. It wasn't a tough fall and frankly didn't hurt much either. It was a relief actually. But now that we are starting school and we are looking for a way better routine we are back on the wagon. We had our first PT evaluation since getting disability for Tyler. Disability for Ty is amazing. AMAZING. First, we don't have to worry about him being covered. Second, we don't have </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8553848226214362688/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8553848226214362688' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8553848226214362688'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8553848226214362688'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/we-are-back-on-wagon.html' title='We are back on the wagon'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7853435788247679506</id><published>2011-08-21T22:36:00.002-07:00</published><updated>2011-08-21T23:13:02.121-07:00</updated><title type='text'>Consideration and Validation</title><summary type='text'>I have been thinking of these 2 words for a long time. At first I didn't think they went together. But the last 3 months I have realized they do go together. A wise stuffed Bear once said "A little Consideration, a little Thought for Others, makes all the difference." Winnie the PoohA stuffed bear had a good point. Several really. Tonight my feelings are very hurt. So hurt that I have wondered </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7853435788247679506/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7853435788247679506' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7853435788247679506'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7853435788247679506'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/consideration-and-validation.html' title='Consideration and Validation'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-971757315097816812</id><published>2011-08-19T20:34:00.004-07:00</published><updated>2011-08-19T21:10:17.742-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Activites'/><category scheme='http://www.blogger.com/atom/ns#' term='Cousins'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='physical therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='fun stuff'/><category scheme='http://www.blogger.com/atom/ns#' term='OT'/><title type='text'>The Bowling Alley</title><summary type='text'>When Dallas went to New York Ty and I went to the bowling alley with my sisters kids. I wasn't sure how it would go so I wanted others to come to help him get excited.  We called the "kids" and we stopped by and picked them up and headed in. Tyler loved it. There was an arcade there and he loved that and really liked bowling. So much so that he hasn't really stopped talking about it when he </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/971757315097816812/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=971757315097816812' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/971757315097816812'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/971757315097816812'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/bowling-alley.html' title='The Bowling Alley'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/-nUYbQNEsYUQ/Tk8yed3KGzI/AAAAAAAADBI/GY9Ju27Y-jg/s72-c/tybowling.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3458771500112039936</id><published>2011-08-18T21:31:00.006-07:00</published><updated>2011-08-18T22:19:25.228-07:00</updated><title type='text'>{Hope Kids} : Thanksgiving Point- Dino museum</title><summary type='text'>Tyler is a member of a organization that gives kids with disabilities and chronic conditions and cancer the chance to do things free of charge to families. They have wonderful activities and they are usually done where the kids are not exposed to many germs. This particular activity was sponsored by Ebay and Chick fil a. We were let into the museum before general admissions. They are currently </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3458771500112039936/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3458771500112039936' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3458771500112039936'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3458771500112039936'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/hope-kids-thanksgiving-point-dino.html' title='{Hope Kids} : Thanksgiving Point- Dino museum'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-xUBymJJv_SY/Tk3pA8mdSMI/AAAAAAAADAI/kXxRjnw11us/s72-c/IMG_2289.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4556143746127925883</id><published>2011-08-17T22:38:00.005-07:00</published><updated>2011-08-18T21:09:34.237-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='physical therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='good days'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>The Scooter</title><summary type='text'>Tyler has a scooter. We bought it at the beginning of the summer. We bought it before we had a loaner bike. He would take the neighborhood kids scooters and try so hard to use it but would fall over and not move at all. They only had 2 wheels.  So we found  a radio flyer with 3 wheels. This particular scooter was different than the other 3 wheel ones because the double wheels were on the front. </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4556143746127925883/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4556143746127925883' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4556143746127925883'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4556143746127925883'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/scooter.html' title='The Scooter'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/-surQyErrMsM/Tkymt5FbawI/AAAAAAAAC_I/2x2z8tfgK9A/s72-c/IMG_2167-1.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5617306144246373801</id><published>2011-08-16T21:21:00.002-07:00</published><updated>2011-08-16T21:30:39.901-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='kindergarten'/><category scheme='http://www.blogger.com/atom/ns#' term='school'/><category scheme='http://www.blogger.com/atom/ns#' term='no bullying'/><category scheme='http://www.blogger.com/atom/ns#' term='behaviors'/><category scheme='http://www.blogger.com/atom/ns#' term='be nice'/><title type='text'>School time, Bullies and Just Mean</title><summary type='text'>When I was growing up school was always anticipated and we would get so excited for it to start. We spent the summer working to get our school clothes so we could buy what we wanted and we went shopping for new stuff. As we got older we got to go to the mall. I always thought that was the coolest thing. To know I got all my stuff from the mall. I still remember the dark blue guess jeans I HAD to </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5617306144246373801/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5617306144246373801' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5617306144246373801'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5617306144246373801'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/school-time-bullies-and-just-mean.html' title='School time, Bullies and Just Mean'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6515309023829701957</id><published>2011-08-15T20:57:00.004-07:00</published><updated>2011-08-15T21:05:42.198-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='LDS'/><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='breastfeeding'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='Love'/><title type='text'>1 Month old.. baby Grayson</title><summary type='text'>Can you believe that Grayson has been with us for a MONTH! What a month. We love him so much and are so thankful that he is here. There are some major adjusting going on in this house but none the less we are grateful for the blessing that he is. At his "man" appointment he had gained a pound and a little more. Huge blessing for me to see the numbers going up. With Tyler I tried and tried to </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6515309023829701957/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6515309023829701957' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6515309023829701957'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6515309023829701957'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/1-month-old-baby-grayson.html' title='1 Month old.. baby Grayson'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-HoGKNfHAtCM/Tknq8m_GJOI/AAAAAAAAC_A/i49Zy4u5TdE/s72-c/IMG_2389-1-2.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2108119258569736099</id><published>2011-08-09T21:08:00.000-07:00</published><updated>2011-08-09T21:09:03.034-07:00</updated><title type='text'>The EC fair</title><summary type='text'>Now that Grayson had graced our household and Grandma and Grandpa Labrum had helped us so much over the summer that we would pay them a small visit. G and G LOVE having their grandkids down. They have such a love for their kids and grandkids that they can't wait to show them off. It worked well for Grayson, since he is a little needy. But most of all Ty LOVES it. While dad was off to New York we </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2108119258569736099/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2108119258569736099' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2108119258569736099'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2108119258569736099'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/ec-fair.html' title='The EC fair'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/-zMCP1iVbnLQ/TkCxqNzOJDI/AAAAAAAAC-A/YwHYgZWG848/s72-c/parade-1.jpg' height='72' width='72'/><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4390701433461336166</id><published>2011-08-05T21:44:00.004-07:00</published><updated>2011-08-07T20:11:53.147-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Reflux'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>Vomit Volcano</title><summary type='text'>Once upon a time in a far away place ( OK.. not so far away!) there was a Small mountain. It was not very big. It was the baby mountain. All it did was eat and sleep and poop.( Oh and cry... and did we mention cry and make noises.)  Then one day the village people ( yes, the REAL village people) Realized that this volcano was going to erupt... and boy did it. Grayson has reflux. Badly. The other </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4390701433461336166/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4390701433461336166' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4390701433461336166'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4390701433461336166'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/vomit-volcano.html' title='Vomit Volcano'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-gvE198MGveM/Tj9TL1PzPvI/AAAAAAAAC94/OAWSlpYLY2A/s72-c/IMG_2062-1.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5154620483464464630</id><published>2011-08-04T22:12:00.004-07:00</published><updated>2011-08-04T22:31:06.417-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='moving'/><category scheme='http://www.blogger.com/atom/ns#' term='jobs'/><category scheme='http://www.blogger.com/atom/ns#' term='adventures'/><category scheme='http://www.blogger.com/atom/ns#' term='Dallas'/><category scheme='http://www.blogger.com/atom/ns#' term='computer'/><title type='text'>New York</title><summary type='text'>My husband is a GENIUS. No really. He is a genius. A computer genius. He is a web developer who has self taught how to program stuff for the Iphone and Ipad. He is really good at what he does. He loves coding for that kind of stuff. While it is all foreign to me, he is able to work contract jobs and his own stuff right now and is basically at home MOST of the time but he is working ALL the time. </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5154620483464464630/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5154620483464464630' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5154620483464464630'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5154620483464464630'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/new-york.html' title='New York'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6906047995126162325</id><published>2011-08-04T20:52:00.003-07:00</published><updated>2011-08-04T22:09:50.254-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='health care'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>A broken heart..... that can be fixed!</title><summary type='text'>We had mentioned in a previous post that we  needed to take Grayson to see a cardiologist. His pediatrician heard a murmur and couldn't tell what it was. It was not a PDA or a PFO which are all somewhat "normal" in babies. It didn't have us to worried. However, the family history did make it a little more concerning. We were able to get into the cardiologist very quickly. ( 2 days!!) And we were </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6906047995126162325/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6906047995126162325' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6906047995126162325'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6906047995126162325'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/08/broken-heart-that-can-be-fixed.html' title='A broken heart..... that can be fixed!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_hen4qWJMVVY/TUmAPF4uh1I/AAAAAAAAAPo/JzcDRa9U1ds/s72-c/broken_heart_by_starry_eyedkid-1.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3428750935935664320</id><published>2011-07-30T22:01:00.002-07:00</published><updated>2011-07-30T22:23:02.665-07:00</updated><title type='text'>A Thankful Over Flowing Heart</title><summary type='text'>Holy cow there are so many emotions that I have been flooding the gates at this house.I  feel so thankful for so many things that I want to remember to tell those people but to also express for others to see just how much my friends and neighbors rock!A HUGE thanks to Laura and Maria for always being willing to have Tyler in their home and allowing him to learn and play with the kids. And most </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3428750935935664320/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3428750935935664320' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3428750935935664320'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3428750935935664320'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/thankful-over-flowing-heart.html' title='A Thankful Over Flowing Heart'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7190186081217050045</id><published>2011-07-29T21:48:00.002-07:00</published><updated>2011-07-29T22:03:40.002-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='Big Brother Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>Baby Grayson- 2 weeks</title><summary type='text'>It is so weird that our sweet baby has been here for 2 weeks. It feels like forever yet I still feel like I could get another week of recovery in. ( I didn't really "get" a recovery either.. so I think I really just need a nap every now and then.)  I would love to say Grayson inherited my sleep gene but that would be a lie. He seems to do a great job taking after his brother and dad. It is still </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7190186081217050045/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7190186081217050045' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7190186081217050045'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7190186081217050045'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/baby-grayson-2-weeks.html' title='Baby Grayson- 2 weeks'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6129/5976910728_8c585409c7_t.jpg' height='72' width='72'/><thr:total>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5685705599070715864</id><published>2011-07-27T21:10:00.004-07:00</published><updated>2011-07-29T21:48:07.487-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='big brother'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='brother'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>Tyler the Big Brother</title><summary type='text'>Ty is doing so much better with Grayson. He has finally decided he isn't such a bad kid after all.  We got him to sit by him in his Mickey Mouse Chair. It didn't last very long but it was better than the nothing we had had before. A few nights ago we tricked him into holding him. Up until that point he would always tell us no. We asked if he would sing a song to him. We then just kinda put the </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5685705599070715864/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5685705599070715864' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5685705599070715864'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5685705599070715864'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/tyler-big-brother.html' title='Tyler the Big Brother'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-sPwJTcSMTGA/TjDlKMbs2uI/AAAAAAAAC9g/8cn-iQlrszM/s72-c/Tylergrayson.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-548675545636527665</id><published>2011-07-23T21:26:00.004-07:00</published><updated>2011-07-23T21:40:59.978-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='NICU'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Baby after preemie'/><title type='text'>Once a NICU mom.....</title><summary type='text'>ALWAYS a NICU mom. No matter what there are so many things I think about that are out of the "norm." I half laugh when I catch myself.  1: Grayson was feeling really hot the other day. I went to the drawer and got out the thermometer. I almost took his temperature. Not kidding! Instead I put it back and took a deep breathe and realized that this wasn't normal, he had been sleeping upstairs in the</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/548675545636527665/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=548675545636527665' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/548675545636527665'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/548675545636527665'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/once-nicu-mom.html' title='Once a NICU mom.....'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-Vzeyf0Yl-1I/Tiuh5TNlq_I/AAAAAAAAC9Y/8KJyQY__WbQ/s72-c/IMG_1820-1.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3642957680676804673</id><published>2011-07-21T21:33:00.002-07:00</published><updated>2011-07-21T22:11:34.145-07:00</updated><title type='text'>Back to the swing of things?</title><summary type='text'>We have had such a crazy summer that I am so looking forward to a daily routine and hopefully a nap a little more often. I am not struggling with the getting 2 kids places but More just trying to do it when I am not 100 percent yet.  Tyler finally got some SSI so we are able to get much better therapy. I am so glad that we are able to get it. There is no better feeling than getting him what he </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3642957680676804673/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3642957680676804673' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3642957680676804673'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3642957680676804673'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/back-to-swing-of-things.html' title='Back to the swing of things?'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4993447111866643140</id><published>2011-07-19T15:14:00.005-07:00</published><updated>2011-07-19T21:10:45.706-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='birth story'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='Amazing dad'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><title type='text'>Happy Birthday Grayson!</title><summary type='text'>I finally have a chance to sit down and write a little. I stink at actually recovering so now that I have overdone it, I have some time to sit and watch my 2 boys and fall in love more and more. On Monday we had a bunch of errands to run and I had gotten our time for our C section. It wasn't scheduled until way late on Tuesday so I took Ty out to lunch and D took him to get his haircut. We played</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4993447111866643140/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4993447111866643140' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4993447111866643140'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4993447111866643140'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/happy-birthday-grayson.html' title='Happy Birthday Grayson!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6008/5948272870_967ac13e88_t.jpg' height='72' width='72'/><thr:total>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-407687850013302705</id><published>2011-07-10T17:44:00.003-07:00</published><updated>2011-07-10T18:18:11.728-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Mickey Mouse'/><category scheme='http://www.blogger.com/atom/ns#' term='crafts'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Pirates'/><category scheme='http://www.blogger.com/atom/ns#' term='Ordinary Miracle'/><category scheme='http://www.blogger.com/atom/ns#' term='fun stuff'/><title type='text'>Mousekabunga Dude</title><summary type='text'>I follow a lot of craft blogs. They always have such fun and nice and pretty stuff. When we have a party, I would love to have all the fun decorations and perfection in one place. But my craft side is pretty lacking in superiority. But creativity and love is where it is at... RIGHT? The new Jake and the Pirates show along with a few Mickey Mouse and our small obsession with the beach makes this </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/407687850013302705/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=407687850013302705' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/407687850013302705'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/407687850013302705'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/mousekabunga-dude.html' title='Mousekabunga Dude'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm7.static.flickr.com/6128/5924540344_9908270479_t.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1494312119304122777</id><published>2011-07-06T20:07:00.003-07:00</published><updated>2011-07-06T21:10:09.867-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='Ordinary Miracle'/><category scheme='http://www.blogger.com/atom/ns#' term='babies'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>Please stop taking my babies away</title><summary type='text'>I was not awake for Tyler's birth. He was pushed into my room, a wonderful blessing was given and he was taken away. I didn't have my contacts and didn't have glasses so I couldn't see him. But my heart went right with him in the helicopter. At 3 days old I had to leave him while they did surgery on his heart. Weeks later they took him away from me again while they performed brain surgery. EVERY </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1494312119304122777/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1494312119304122777' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1494312119304122777'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1494312119304122777'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/please-stop-taking-my-babies-away.html' title='Please stop taking my babies away'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-DAhWmMg3uUo/ThUxYzM93AI/AAAAAAAAC84/R_Pz5o4N9O0/s72-c/babytylermickey.jpg' height='72' width='72'/><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2753240416392121134</id><published>2011-07-05T20:55:00.004-07:00</published><updated>2011-07-05T22:37:49.344-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='insurance reform'/><category scheme='http://www.blogger.com/atom/ns#' term='medical reform'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='insurance'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>Back to my opinion- Insurance reform</title><summary type='text'>With a baby on the way and the medical issues that we have encountered I am really interested in what is said about insurance, medical reform, and what people are saying about medical. Especially with new elections coming up, I really want to have my voice heard about the things that I feel are important. A few weeks ago a man decided that it was in his best interest to rob a bank. He went into </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2753240416392121134/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2753240416392121134' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2753240416392121134'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2753240416392121134'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/back-to-my-opinion-insurance-reform.html' title='Back to my opinion- Insurance reform'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4660764490617571649</id><published>2011-07-03T21:45:00.002-07:00</published><updated>2011-07-03T21:51:29.791-07:00</updated><title type='text'>You need to sit down day</title><summary type='text'>After our 35 weeks NST and my doc's appointment we were told we needed to sit down. While I took that to heart I also did what I could while resting. When Friday rolled around I HAD to make it to an appointment but most of it was sitting and the rest we ended up in Labor and delivery. When the last steroid shot was injected the nurse said " if you don't sit down and take it easy and just forget </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4660764490617571649/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4660764490617571649' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4660764490617571649'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4660764490617571649'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/you-need-to-sit-down-day.html' title='You need to sit down day'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3012069929177524918</id><published>2011-07-02T22:49:00.003-07:00</published><updated>2011-07-02T23:21:28.882-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='labor and delivery'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='contractions'/><title type='text'>Friday- Labor and Delivery</title><summary type='text'>We had a full week planned. We had our appointments at the beginning of the week, a play date and then a day of Social security interviews for Tyler. I went to our Social Security appointment and I got to the office and realized I had left my ID at home. Luckily, they ask enough questions about who you are, what you are doing, and who you are involved with that you don't really "need it." But </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3012069929177524918/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3012069929177524918' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3012069929177524918'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3012069929177524918'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/friday-labor-and-delivery.html' title='Friday- Labor and Delivery'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7786831901845259612</id><published>2011-07-02T21:39:00.002-07:00</published><updated>2011-07-02T22:14:28.419-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='pretend play'/><category scheme='http://www.blogger.com/atom/ns#' term='play'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='Discovery'/><category scheme='http://www.blogger.com/atom/ns#' term='friendship'/><category scheme='http://www.blogger.com/atom/ns#' term='Gateway'/><title type='text'>Discovery Museum</title><summary type='text'>Our friend Amy and Oli ( and her 2 new sweet girls) invited us to join them at the discovery museum. We were super excited and left to met them right when the museum opened. Ty has been there before and the first time was kinda a bust. He liked it but he needed a lot of help. While I don't mind helping it is nice to have your almost six year old be able to do some things all on his own.  I told </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7786831901845259612/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7786831901845259612' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7786831901845259612'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7786831901845259612'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/07/discovery-museum.html' title='Discovery Museum'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm6.static.flickr.com/5035/5896261628_644244d56d_t.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7811844251146766825</id><published>2011-06-28T20:54:00.003-07:00</published><updated>2011-06-28T21:58:57.268-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='c section'/><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='stitches'/><category scheme='http://www.blogger.com/atom/ns#' term='full term'/><title type='text'>35 weeks- NST and Contraction Central</title><summary type='text'>We have hit the ultimate week of 35 weeks. The chances of a NICU stay dropped HUGELY this week and we are breathing a really LARGE sigh of relief. We know we are not out of the woods, thank you whimpy white boys, but we are closer to the edge of the woods. Today was a double appointment day. I don't mind it just gives me even more assurance that he is just fine. The NST went really well. My </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7811844251146766825/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7811844251146766825' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7811844251146766825'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7811844251146766825'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/35-weeks-nst-and-contraction-central.html' title='35 weeks- NST and Contraction Central'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-90782875991846554</id><published>2011-06-23T23:47:00.003-07:00</published><updated>2011-06-24T00:08:49.908-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='mommyhood'/><category scheme='http://www.blogger.com/atom/ns#' term='accident'/><category scheme='http://www.blogger.com/atom/ns#' term='stitches'/><category scheme='http://www.blogger.com/atom/ns#' term='moments'/><title type='text'>Do you REALLY need your toe?</title><summary type='text'>We had discussed if we wanted to deal with the outdoor blow up pool for Tyler this summer. Last summer we LOVED it and we spent a great deal of time outside in it. This year, it was cold cold till just recently and now it is nice and hot by mid afternoon. Our backyard looks great with nice green grass and our new fire pit when we want to get it out. It has been amazing for bbq's and we have had </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/90782875991846554/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=90782875991846554' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/90782875991846554'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/90782875991846554'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/do-you-really-need-your-toe.html' title='Do you REALLY need your toe?'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-p79a9_TAm5E/TgQ3BQ3IF4I/AAAAAAAAC8A/OYY6oNMqkzU/s72-c/cut%2Btoe.jpg' height='72' width='72'/><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1791673003278646563</id><published>2011-06-22T14:38:00.004-07:00</published><updated>2011-06-22T15:09:34.867-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Pirates'/><category scheme='http://www.blogger.com/atom/ns#' term='mommyhood'/><category scheme='http://www.blogger.com/atom/ns#' term='fun stuff'/><title type='text'>Treasure Maps</title><summary type='text'>Tyler has really liked pirates lately and has really liked watching the new show on Disney Junior.  We have indulged the kid in a pirate chest with gold dubloons and everything.  This time he is was indulged in something even more fun. His own treasure map. The first map was simple. It was how to get to his lunch from the kitchen to the "little table." He really liked it. After trying really hard</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1791673003278646563/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1791673003278646563' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1791673003278646563'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1791673003278646563'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/treasure-maps.html' title='Treasure Maps'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm6.static.flickr.com/5225/5860986759_c9507a50a2_t.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-6247548223197699815</id><published>2011-06-21T22:22:00.003-07:00</published><updated>2011-06-21T22:32:47.079-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='sickness'/><title type='text'>Sickness is in the air</title><summary type='text'>A few days last week we noticed that we had a sick kid. There was just something off about the Tyke. We noticed a REALLY high fever and I generally NEVER take his temperature. A NICU habit of worrying made it so that I had to slowly put the thermometer away and NEVER touch it again. Instead I went by the old wives tale of just feeling hot. With new baby stuff around I went ahead and whipped out </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/6247548223197699815/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=6247548223197699815' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6247548223197699815'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/6247548223197699815'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/sickness-is-in-air.html' title='Sickness is in the air'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-M3Da5GIdTyA/TgF-GH2zDnI/AAAAAAAAC7g/D4yqjof8buI/s72-c/IMG_1212.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7986732843489412087</id><published>2011-06-21T21:38:00.003-07:00</published><updated>2011-06-21T22:19:19.269-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='baby Grayson'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><title type='text'>34 Weeks- Non stress test</title><summary type='text'>I can't even begin to tell you the excitement we are feeling in regards to this new little dude. 34 weeks is HUGE. If this kid came right now chances of a long NICU stay are pretty much slim to NONE! The idea that he would have a bleed in his brain.. NONE. Bad eyes.. you guessed it NONE! We are feeling SO blessed. So I bet you are wondering if I loudly complain about being pregnant? Um nope. I </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7986732843489412087/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7986732843489412087' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7986732843489412087'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7986732843489412087'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/34-weeks-non-stress-test.html' title='34 Weeks- Non stress test'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-2148422568275417551</id><published>2011-06-18T21:57:00.002-07:00</published><updated>2011-06-18T22:26:02.532-07:00</updated><title type='text'>Happy Father's Day ( with lots of pictures)</title><summary type='text'>Since D is almost asleep and I have stolen his laptop I thought I would do a little post. I hope he knows just how much Tyler and I appreciate all he does. D is one of the most loving and caring people in the whole world. I don't care to even hang out with other people because I prefer to be with him. I could spend all of my time with him and never get tired of it. He works so hard for Tyler and </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/2148422568275417551/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=2148422568275417551' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2148422568275417551'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/2148422568275417551'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/happy-fathers-day-with-lots-of-pictures.html' title='Happy Father&apos;s Day ( with lots of pictures)'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm5.static.flickr.com/4133/5173455199_55a7e99a4b_t.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3388658687654707227</id><published>2011-06-13T21:18:00.002-07:00</published><updated>2011-06-13T21:35:07.661-07:00</updated><title type='text'>Grayson has a birthday!!</title><summary type='text'>I had an OB appointment today. I only see him every other week and he is doing all the "regular" stuff. He is really kinda funny. He will say things that he would say to ever mom and tells me "if this was a normal pregnancy I would say..." Normally it is stuff about prematurity or if the baby was born at this point what chance of survival. He always follows up with, "but you don't care at this </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3388658687654707227/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3388658687654707227' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3388658687654707227'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3388658687654707227'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/grayson-has-birthday.html' title='Grayson has a birthday!!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-643507286702681050</id><published>2011-06-12T21:10:00.002-07:00</published><updated>2011-06-12T21:43:43.878-07:00</updated><title type='text'>32 week checkup and Non stress test</title><summary type='text'>When our plan was made to be as cautious as possible 32 weeks seemed so far off the way that I wasn't even honestly sure we would make it that far. I would have been estatic to get to 30 weeks but 32 the chance of a long term disability is so small that I would take those odds over even the 30 week chances. The risk of ROP is less then 1 percent at this point. So we will take it. We were able to </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/643507286702681050/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=643507286702681050' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/643507286702681050'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/643507286702681050'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/32-week-checkup-and-non-stress-test.html' title='32 week checkup and Non stress test'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7303629220256366809</id><published>2011-06-11T21:25:00.001-07:00</published><updated>2011-06-11T23:07:28.818-07:00</updated><title type='text'>Dream Night ( warning: picture over load)</title><summary type='text'>A month or so ago we were told about a Dream Night at the Zoo. The next Monday at Shriner's we were given a invitation with Ty's name on it. Dream Night is a night at the zoo after hours where the kids with disabilities and some chronic illnesses are treated to a free dinner, up close encounters and just a fun night. Usually groups that we go with to things like this are geared toward kids with </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7303629220256366809/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7303629220256366809' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7303629220256366809'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7303629220256366809'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/dream-night-warning-picture-over-load.html' title='Dream Night ( warning: picture over load)'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm3.static.flickr.com/2725/5819805563_6d2dd8df2d_t.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-150093212819034248</id><published>2011-06-10T08:48:00.004-07:00</published><updated>2011-06-10T09:10:23.995-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='anniversary'/><category scheme='http://www.blogger.com/atom/ns#' term='Camping'/><category scheme='http://www.blogger.com/atom/ns#' term='family time'/><title type='text'>Happy anniversary..... to Tyler</title><summary type='text'>The 4th of June was mine and Dallas' anniversary. I wanted to get him something that we both could enjoy but that he has wanted. I generally let him buy whatever he wants and then just tell him it was his anniversary ( or whatever occasions) present. But this year I was on a quest. We went to Aunt Jennifer's store ( Smith's Marketplace!) and looked and looked. We found just what we wanted too! We</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/150093212819034248/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=150093212819034248' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/150093212819034248'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/150093212819034248'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/happy-anniversary-to-tyler.html' title='Happy anniversary..... to Tyler'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-03fwPqTTZEU/TfI9UXm-yRI/AAAAAAAAC6Q/_KlPGSTOj9w/s72-c/IMG_1002.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-552978541481809953</id><published>2011-06-08T21:35:00.002-07:00</published><updated>2011-06-08T21:56:39.833-07:00</updated><title type='text'>Honoring through obedience</title><summary type='text'>I have 2 really great and fun and picture filled blogs that I am trying to get together. But tonight i felt like I could finally put into words some feelings of the last week. I grew up in a really small town. ( REALLY small) At the time of growing up I couldn't wait to get out. I don't want to move back either but I do like the love and support from the people here.  One such person passed away </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/552978541481809953/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=552978541481809953' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/552978541481809953'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/552978541481809953'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/honoring-through-obedience.html' title='Honoring through obedience'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-1903998504088978709</id><published>2011-06-04T23:40:00.003-07:00</published><updated>2011-06-05T00:18:34.146-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='anniversary'/><category scheme='http://www.blogger.com/atom/ns#' term='Family'/><category scheme='http://www.blogger.com/atom/ns#' term='Dallas'/><category scheme='http://www.blogger.com/atom/ns#' term='Love'/><title type='text'>Dallas</title><summary type='text'>Since he is trying to sleep and I am still awake waiting for Grayson to decide he wants to move I thought I would get this up for his long week with out us!We finally made it to six WHOLE years of being married. Though we didn't "date" much longer than that I couldn't have asked for a better person to be married to. I couldn't ask for a better person to have a family with and one to go through </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/1903998504088978709/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=1903998504088978709' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1903998504088978709'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/1903998504088978709'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/dallas.html' title='Dallas'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://farm1.static.flickr.com/217/488912279_3f53202e51_t.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4487904906548507661</id><published>2011-06-02T22:42:00.004-07:00</published><updated>2011-06-02T22:57:35.716-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='Ordinary Miracle'/><category scheme='http://www.blogger.com/atom/ns#' term='kindergarten'/><category scheme='http://www.blogger.com/atom/ns#' term='preschool'/><title type='text'>Graduation</title><summary type='text'>Ty had is graduation program on Wednesday. After a horrific night the night before, ( like up 6 or seven times, out of bed, crying all night) I sent him off to school a little crabby. Ok. A LOT crabby. I knew I would be there in a few hours and usually he doesn't ask like a punk at school. I had some errands to run ( which made me in a bad mood because I was already tired) and got there as they </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4487904906548507661/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4487904906548507661' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4487904906548507661'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4487904906548507661'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/06/graduation.html' title='Graduation'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-rFKTK10H7Y4/Teh2RKYoMoI/AAAAAAAAC5g/RU9fpXJ1RzA/s72-c/IMG_0965-2.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5085549086484905522</id><published>2011-05-30T23:06:00.002-07:00</published><updated>2011-05-30T23:11:09.147-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='My baby'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><title type='text'>The morning after</title><summary type='text'>Oh the morning after the all day fight with Siatica was amazing. Though there is a lot of pain I didn't have to crawl. I didn't get up early, thanks to Dallas and his amazing parenting skills! I was able to slowly do what I needed to do. Today was filled with Tyler, Tyler and Dallas and a lovely lacrosse game. One of which I wasn't feeling so hot so curled up watching and fell asleep. I am on </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5085549086484905522/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5085549086484905522' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5085549086484905522'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5085549086484905522'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/morning-after.html' title='The morning after'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7853536608350123039</id><published>2011-05-29T21:23:00.002-07:00</published><updated>2011-05-29T21:53:05.313-07:00</updated><title type='text'>Siatica- A love story</title><summary type='text'>During my years of battling Endometriosis we knew that when I got to the point where my legs were numb and it hurt to walk and my tailbone felt like it was broken it was time to have surgery. I walked around with the pain for MONTHS before my last surgery. It was during that last surgery that they found endometriosis around my tail bone and on my sciatic nerve. After removing the adhesion's and </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7853536608350123039/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7853536608350123039' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7853536608350123039'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7853536608350123039'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/siatica-love-story.html' title='Siatica- A love story'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3069728771913056220</id><published>2011-05-25T20:43:00.003-07:00</published><updated>2011-05-26T10:37:55.562-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><title type='text'>Why  we are done "cooking" before 40 weeks...</title><summary type='text'>Grayson has a due date of July 31/August 1st. We have known since around 6 weeks that Grayson wouldn't make it to that date. We weren't sure exactly what the plan was but it wasn't long that we got a nice road map to let us know. After our first visit with the perinatologist we were given a tentative plan. Of course that was only dependent on HOW it went and how long we were pregnant. It also </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3069728771913056220/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3069728771913056220' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3069728771913056220'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3069728771913056220'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/why-we-done-cooking-before-40-weeks.html' title='Why  we are done &quot;cooking&quot; before 40 weeks...'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-5618496705554748256</id><published>2011-05-25T11:15:00.003-07:00</published><updated>2011-05-25T11:28:36.926-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='rifton bike'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='Shriners hospital for children'/><category scheme='http://www.blogger.com/atom/ns#' term='. tyler'/><title type='text'>HOORAY!! Another list</title><summary type='text'>Not only is it another list but it is actually a TANGIBLE- you can see where you ARE on the list- list. For me that is a NICE little list. The pretend list is kinda a cheap way of saying " Good luck with that." So what is this list? Tyler is OFFICIALLY on the BIKE LIST at Shriners! He had specific things he had to reach in order to get on the list and our Therapist is kind of a stickler on it. He</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/5618496705554748256/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=5618496705554748256' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5618496705554748256'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/5618496705554748256'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/hooray-another-list.html' title='HOORAY!! Another list'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-919948619762886937</id><published>2011-05-23T21:41:00.002-07:00</published><updated>2011-05-23T21:59:11.379-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><title type='text'>30 weeks!!!!</title><summary type='text'>NEVER in my life did I EVER think we would be this pregnant and have had no major complications. I can't even call the 25 week scare thing a complications because with a shot we were out the door. ( sort of!) We have no appointments till next week when we start the Non stress tests at the perinatologist. I am half excited about that. Only because I can really be FINE listening to his heartbeat </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/919948619762886937/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=919948619762886937' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/919948619762886937'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/919948619762886937'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/30-weeks.html' title='30 weeks!!!!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7768202939385469514</id><published>2011-05-21T21:26:00.003-07:00</published><updated>2011-05-21T21:39:23.932-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><title type='text'>29.6 weeks - Pregnancy Update</title><summary type='text'>I saw my OB, Dr. A, a week ago and we had to perform my glucose testing again. I had taken on at 15 weeks and had done a urine catch/collection for 24 hours to make sure that if there is anything going on they have a baseline and can find out how bad or not bad it is. Truthfully I think they just really wanted me to experience what i missed before. I happily drunk the drink and they took my blood</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7768202939385469514/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7768202939385469514' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7768202939385469514'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7768202939385469514'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/296-weeks-pregnancy-update.html' title='29.6 weeks - Pregnancy Update'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-4254218730199815655</id><published>2011-05-18T15:51:00.002-07:00</published><updated>2011-05-18T16:57:51.907-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='ROP'/><category scheme='http://www.blogger.com/atom/ns#' term='braille'/><category scheme='http://www.blogger.com/atom/ns#' term='vision instructor'/><title type='text'>Kindergarten IEP</title><summary type='text'>As of this week, we have officially IEP and transitioned into Kindergarten. School is still going on for a few more weeks but I had requested in his original IEP to have a review to make sure his goals were hard enough that he can be as "caught up" as possible come kindergarten. Cognitively and academically Ty is doing very well. He is what they would consider "ready" for kindergarten. He doesn't</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/4254218730199815655/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=4254218730199815655' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4254218730199815655'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/4254218730199815655'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/kindergarten-iep.html' title='Kindergarten IEP'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-g0PzgVXhLqo/TdRNcuv6SWI/AAAAAAAAC3Q/tBw1HjVWbzY/s72-c/IMG_0615-2.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3332362634823758183</id><published>2011-05-16T22:11:00.003-07:00</published><updated>2011-05-16T22:21:36.888-07:00</updated><title type='text'>Talk all you want!</title><summary type='text'>The last few days have started really early.  On those days I tend to lose my patience with him faster. It makes it so having dad home is a really treat and I MIGHT just be able to keep my bearings! Tyler never use to sleep great. We added a allergy/asthma med and was sleeping fabulous. I haven't refilled it but will be on Wednesday and hope that it stretches back to the almost miss the bus sleep</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3332362634823758183/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3332362634823758183' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3332362634823758183'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3332362634823758183'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/talk-all-you-want.html' title='Talk all you want!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-8509494093466374996</id><published>2011-05-13T21:29:00.003-07:00</published><updated>2011-05-13T22:48:37.030-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='baclofen trial'/><category scheme='http://www.blogger.com/atom/ns#' term='preemie facts'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='serial casting'/><title type='text'>Ufo's...... Afo's... whatever</title><summary type='text'>A few weeks ago Ty was casted for his next set of braces. We had our new evaluation for PT and had our appointment with the Spastic clinic. The PT thinks braces are a "wonderful" idea while the docs and 4 therapist say they won't work. The docs and the therapists at PCMC don't think it will work because his ankles are what is tight. They think something helping the falling arch in his feet will </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/8509494093466374996/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=8509494093466374996' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8509494093466374996'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/8509494093466374996'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/ufos-afos-whatever.html' title='Ufo&apos;s...... Afo&apos;s... whatever'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/-thdmC6UD26I/Tc4ReII_S9I/AAAAAAAAC3A/W6u_qNLUBL4/s72-c/IMG_0036-2.jpg' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7378636007365121189</id><published>2011-05-10T13:09:00.003-07:00</published><updated>2011-05-10T13:29:15.555-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='My baby'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy'/><category scheme='http://www.blogger.com/atom/ns#' term='pregnancy after preemie'/><category scheme='http://www.blogger.com/atom/ns#' term='Grayson'/><title type='text'>27 weeks- A week late</title><summary type='text'>Since we are in our 28th week I realized I didn't do our appointment from last week. I told you life was crazy!I had an appointment in Payson at my OB for 27 weeks. I guess we were suppose to do our second glucose test. I had one at 16 weeks along with a 24 hour urine to make sure that *if* I developed pre eclampsia that we would have a great baseline to go back to.  I was hoping that everyone </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7378636007365121189/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7378636007365121189' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7378636007365121189'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7378636007365121189'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/27-weeks-week-late.html' title='27 weeks- A week late'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-7732485659736543958</id><published>2011-05-09T20:35:00.003-07:00</published><updated>2011-05-09T21:11:06.762-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy awareness day'/><category scheme='http://www.blogger.com/atom/ns#' term='strollers'/><category scheme='http://www.blogger.com/atom/ns#' term='adaptive equipment'/><title type='text'>Hurray!!</title><summary type='text'>What an INSANE week. After the Spastic clinic and Baby Isaac coming I really wanted a calm and collected week. Nothing ever goes as planned. At the end of the week, after 8 months of waiting and many phone calls, reorders and mean words to insurance companies and IHC people we became the owners of a NEW Swifty stroller. After talking to the wheel chair shop every day this week the Secretary </summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/7732485659736543958/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=7732485659736543958' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7732485659736543958'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/7732485659736543958'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/hurray.html' title='Hurray!!'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/-ijcMSybBAds/Tci5epo9pHI/AAAAAAAAC2w/Lj_zQQmDUd8/s72-c/swifty-2.jpg' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5170961025944146154.post-3221496999366056303</id><published>2011-05-06T20:21:00.002-07:00</published><updated>2011-05-06T21:45:46.178-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cerebral palsy'/><category scheme='http://www.blogger.com/atom/ns#' term='Tyler'/><category scheme='http://www.blogger.com/atom/ns#' term='Long term preemie issues'/><category scheme='http://www.blogger.com/atom/ns#' term='long term care'/><title type='text'>Spastic Clinic</title><summary type='text'>After our appointment with Beverly we were sent to the spastic clinic. The Spastic clinic is where there is a bunch of therapists and a physiatrist ( a CP doc) going through the things that will make the kiddo's more functional and give them a possibility of a normal gait or something that will make them feel better and not hurt every day.  I think that is something that I forget. Minus the stuff</summary><link rel='replies' type='application/atom+xml' href='http://prematuritywithlove.blogspot.com/feeds/3221496999366056303/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=5170961025944146154&amp;postID=3221496999366056303' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3221496999366056303'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5170961025944146154/posts/default/3221496999366056303'/><link rel='alternate' type='text/html' href='http://prematuritywithlove.blogspot.com/2011/05/spastic-clinic.html' title='Spastic Clinic'/><author><name>Miracles Happen</name><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_IEd8s5UVzQ8/TDlz0Xw10zI/AAAAAAAACRM/XQe8vs_aFkw/S220/IMG_9354.jpg'/></author><thr:total>1</thr:total></entry></feed>
